Wonderboy update

Well, wouldn’t you just know that i can never let a thing lie…

Last week, after the very unsatisfactory phone call in which i protested against Wonderboy being given 15 unauthorised absences, i wrote an exceedingly long email to the school. Today it resulted in a 15 minute telephone conversation with i think, the deputy head of the school, but possibly not.  According to my daughter he is the one who gets things done when no one else can, so i was glad to speak to him. And i’m glad to say that the conversation ended with his informing me that he will quash the abscences that were recorded as unauthorised. Hoorah! That’s one less pressure in a sea of pressures that we have to contend with at the moment.

I am still going ahead and getting the letter from the doctor though, so as to avoid any further such nonsense.

In fact, Wonderboy had an appointment with a new doctor at the local surgery this afternoon. He had just got home from school and we were getting ready to go out of the door when he had a massive nosebleed. He has minor ones almost every day, but these large ones do occur a couple of times a week. We cleaned him up a best we could and headed out to the doctors.  Usually we wait for up to 90 mimutes to be seen, but God had it that we were in the doctors room within 10 minutes of having arrived there.

First off i explained that I have an appalling memory (i think its the daily codeine) and showed him my list. He said it was okay for me to read off it, so i did.

I explained about the school and the pressure Wonderboy is under to go to school when he is ill, the abscences being recorded as unauthorsed etc.  He said ‘no problem’ i will write you a letter and you can collect it tomorrow.

I explained that Wonderboy is chucking up loads of green gunk (sorry if you are eating while reading this) and that i think he may be heading for another chest infection.  The Doctor examined Wonderboy and said that he would prescribe antibiotics before an infection took hold.

I explained that Wonderboy has these strange patches of dark skin behind his ears and on his neck. (he looks like he’s turning into a giraffe!) the Doctor explained that this was a fungal infection and prescribed a cortizone cream.

I explained that Wonderboy’s iron levels being  low ait was affecting him physically (i mentioend various symptoms) he prescribed ‘iron’ syrup, so now i have my own little Iron man in the house!

We had never seen this doctor before and he was amazing.

Now the only thing is that he said that as well as Wonderboy’s low iron level, his raised red blood cell count  etc, his haemaglobin levels are very low and that when we go to see the specialist, the specialist may want a bone marrow sample from Wonderboy so as to try to ascertain what is wrong. He said even with the frequent noseleeds it doesn’t seem right to lose so much haemaglobin.

Wonderboy looked at me in fear when he heard about the bone marrow extraction,  and i winked at him as if to say it’ll be okay, but truth is i have read about this online and from what i’ve read it’s where the doctor goes into the hip bone to take a sample of the marrow while the child is still awake.  I’ve read that this is an extremely painful proceedure for children in most cases/

I was wondering if any of you, dear readers, have any experience of this or if you know anyone who has had this done?

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16 Responses to Wonderboy update

  1. Moni says:

    Oh I know you must be so worried for him to may have to go through this. Know I continue to hold you all in my prayers!!!

  2. Suzanne says:

    Hey, Deb…you are going through the mill…I’m sending on prayers and the biggest hug I can sent through this interenet. Suz

  3. mum6kids says:

    I too have heard it hurts quite a bit. Seeing that this new doc seems to be a bit more sensible you could discuss pain management with him. He may be willing to prescribe Wonderboy a short course of fairly decent anelgesia to deal with the day and any days following when it may ache like hell.
    You can also dose him to the eyeballs with arnica.
    I am glad the school have backed off; that was shockingly unsupportive!
    I’ll keep praying and offering up.
    God bless

  4. John Bowden says:

    I’m sorry your son has so many problems and will continue to lift him (and you) up in prayer .. it’s tough for he and his family in so many ways.

  5. Praying for healing and for peace of mind for you Deb.

    All thanks to our heavenly father for the new doctor – may he remain supportive and easy to get to see. Amen

  6. E. Campion says:

    ukok, Argent asked me to drop by to offer any help I could. I’ve seen one of these bone marrow biopsies done whilst working with an oncologist, and yes, they are painful, but thankfully, they are brief. I’m not entirely certain why a haematologist would want one of these done before doing quite a few other simple blood tests. But, if so, know that it will go a very long way toward figuring out what ails Wonderboy.

    You’ll be in my prayers.

  7. Barbara says:

    Praying for you ALL…

  8. Owen says:

    Lord, hear our prayer.

  9. Karen says:

    Prayers for you all, and glad you got a doctor who is sympathetic.

  10. Sarah says:

    I’ll keep these intentions in my rosary and daily prayers.
    God bless you. Chin up (even when it’s hard). Love and hugs, JOT/Sarah

  11. Alexa says:

    We prayed for Wonderboy and you tonight in our family rosary, Deb – will continue to do so.

    God bless.

  12. Renee says:

    Praying for peace for you all.

  13. Melanie says:

    Praying for Wonderboy & you. It’s so difficult to see our children suffer, and not be able to fix it right away! I hope some answers come from the bloodwork and tests.

  14. Tim J. says:

    I can’t say whether the bone marrow procedure will be very painful or not, but I am praying for you and your boy (and girl).

    I’m very likely going to do the Facebook thing, but haven’t taken the time to do it, yet. I’m really looking forward to it, though.

    Thanks for dropping by my blog and for your nice comments.

  15. Rosemary says:

    So glad the school thing is cleared up and that you were able to see a good doctor. I don’t know about the bone marrow thing. Hopefully with a child they could give him something. i will keep praying…

  16. Mary Margaret says:

    I know this is really late–haven’t been reading the blogs as my older daughter was visiting (and her husband). Hadn’t seen her since December, so I was a bit busy.

    Anyway, my elder daughter had a bone marrow draw when she was in the hospital with hemolytic anemia. She was almost 12 years old at the time. Our doctor and nurses did a wonderful job, and I don’t think it was painful at all for her, although it was very, very scary. The pain control procedure included a topical anaesthetic patch placed on the site for (I think) about an hour, followed by local anaesthetic into the muscle tissue (needle didn’t hurt, due to the great topical anaesthetic and the excellent technique of the doctor). The only part they couldn’t numb was the marrow itself. They warned her that it might hurt, especially that it might feel like an electric shock running down her leg. She said that she felt it, but it wasn’t really painful.

    Hope this helps if Wonderboy has not yet had this procedure done. Ask the doctor if they will use local anaesthetic for the needle site–I really think they will (definitely should). If you will be in the procedure room, and are squeamish about needles, don’t look at this one. It is long and thick (has to be, to draw up the marrow).

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