Blog Update

A brief post to apologise for being so negligent with regards the blog and to once more implore your prayers. Dad was rushed into hospital via ambulance late on Saturday evening. Mum and I left him at about 3am and he was having a really rough time. He has been very unwell since leaving hospital last time and he is largely dependant on oxygen for most of his days and nights but even this hasn’t been sorted out properly yet. Last week he saw his specialist who said he MUST be on oxygen for at least 15 hous a day…but the people who deal with the oxygen say Dad has to wait another month till his next oxygen appointment and then it will be sorted. As you can imagine, in the meantime Dad suffers terribly. He is being incredibly brave (as is Mum).

He is on lots of medication and has some oxygen at home, but not the quantities he needs, and of course, those damned chest infections keep slamming his body just about every week..as soon as his antibiotics and steroids finish he needs to go back on them.

In fact some of the tests Dad has had prove that there is only one antibiotic that now works on him and he has had a years worth of other antibiotics that have done naff all, interpersed from time to time with the one antibiotic that does actually work (though the docs who prescribed it didn’t know at the time).

As regular readers will be aware, Dad has asbestosis plaque on his lung(s), he has only 40% of his lungs working at any time and now he has blood clots (old and new) in his lungs, he suffers form C.O.P.D chronic bonchitis (the type that never goes)/emphysema. In addition to this they have now discovered that the right side of his heart is weak as it has been trying to do the job of supporting his inefficient lungs for so long and some of the blood clots are right next to right side of his heart which adds further complications.

We will be visiting Dad later on today. Since Saturday evening we had been visiting him in the A & E department as there are no beds available on the chest ward at the hospital where Dad needs to be assesed, so once again, he is being shuffled around from one ward to another while he awaits being placed on the very ward where the medics actually specialise in his health problems!

It is very frustrating.

Anyway, just wanted to let you all know how things are with Dad as so many of you have expressed concern whether here on the blog, via email or elsewhere on the internet.

Thanks so much for that.

In other news, Wondergirl is doing really well with her commute to and from Uni, clocking well over 400 miles a week of driving, bless her. She has made new friends and is embracing uni life in so far as she can when she lives so distant from it.

In still other news Blunderboy and i have not managed to work out our differences. Haven’t seen him now for months and don’t know when i will again. However, i have written to him a couple of times just to let him know i love him and miss him and of course, to say that he is always welcome to visit or to come for tea. He has chosen not to respond and instead has sought to effectively cease contact.

In better news he did actually phone my mum last week to see if he could visit. (whether it was because i wrote in my last letter that i was surprised he had not contacted his grandparents, or whether he would have done anyway i don’t know). He did visit my parents for a couple of hours last week. I wasn’t there. The main thing is that i know he is well and that he is alright and as long as i know that, then i try not to be overly anxious about the situation between us. (Easier said than done).

Rightio, think that’s about everything i have to say at this time…apart from that i am a bit torn about the blog….a couple of times i have thought about deleting it but i have resisted the temptation. I suppose i feel that i ought to blog more regularly, but then if i am not having a good day or family need me etc, i don’t feel like blogging. Sometimes i think there is something i would like to post about, but then it slips my mind or life takes over….as it is does…but i do think i shall blog again more frequently, when life settles down.

How can i put this…i just don’t feel that i can ‘do deep’. I don’t want to blog frippery, but i just do not have the mental headspace for ‘deep’ posts of any sort. I may however, get back into blogging about my more creative side and what i’m getting up to when i do have the energy or time to let fly creatively. Maybe that might be of interest to some who pass this way? What say you?

Please know that i remember you all at Mass and think about you often and I am very thankful for your kind words, encouragement and your support for me and mine.

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Posted in Uncategorized | 16 Comments

Where’s my head at, where’s my head at…

Firstly, apologies for the lack of recent updates. Dad was bought home by ambulance on Wednesday evening. He is in a bad way and requires oxygen and his nebuliser and a suitcase load of medication to help him through each day and night. He’s glad to be home, but things are hard going for him healthwise. I showed him some of your comments on my mobile phone and they cheered him up, so thank you all so very much for your kind words and prayerful support. It is, as always, so very much appreciated. Special thanks go to:

8 Comments (+add yours?)

  1. Adrienne
    Sep 12, 2010 @ 00:26:23

    Nice to hear some somewhat good news!!

    Reply

  2. Tim J.
    Sep 12, 2010 @ 00:26:32

    Sorry to hear about this, but glad he is being well cared for. I will remember him and you in my prayers tonight.

    Reply

  3. Mary Lou
    Sep 12, 2010 @ 00:53:26

    I join in all the masses, rosaries and prayers being offered for your Dad as well as you and your Mother. This must be a terribly frightening time for all of you! What you speak of is so serious. Your dear mother is lucky to have you by her side to help her through. We will all continue to hold all of you in prayer.

    Reply

  4. Barb Szyszkiewicz, sfo
    Sep 12, 2010 @ 18:01:55

    Wow, that is a long time to have clots in the lungs and not even know. He is lucky that nothing bad happened to him in all that time! Prayers will continue!

    Reply

  5. Renee
    Sep 13, 2010 @ 15:36:56

    I have been following your dad’s progress on Facebook. Be assured of my prayers for you all. I will be at vespers tonight for the Exaltation of the Holy Cross, and will especially remember your dad. Blessings!

    Reply

  6. Rosemary Bogdan
    Sep 14, 2010 @ 13:04:56

    Oh, Deb, I’ve been out of town and did not read this request. Know that your dad is now in my prayers!! May God bless him, keep him safe, and give him peace. Prayers for you and the rest of your family too!!

    Reply

  7. mum6kids
    Sep 15, 2010 @ 16:39:54

    Good heavens Deb, I am glad they found out what was happening!
    More prayers.
    Will email you tomorrow.
    I hope he will be allowed home asap.
    God bless

    Reply

  8. Mary Lou
    Sep 17, 2010 @ 06:21:19

    I am worried. Can you let us know that you are all hopefully ok? I pray that God stays by your side, holding you up, if needed. I know that none of this is easy

I had my rheumatologist appointment yesterday. Saw a nice consultant who sent me off to have more blood tests. Didn’t get a diagnosis per se, but fibro and CFS (chronic fatigue syndrome) were mentioned. He says that he wants to rule out other possiblities though, hence the 7 vials of blood they took from me yesterday!

The Pope’s visit. I haven’t been participating as i would have liked. The closest i’ve got to doing so is watching the Holy Father meeting the Queen, on the tv screen in the rheumatologists waiting area yesterday…..2 couples kicked off about the ‘bloody disgraceful financial cost’  of the Pope’s visit but to be honest, though i was tempted to speak out, i was trying to compose my thoughts for my imminent appointment and was finding it difficult enough to concentrate my thoughts as it was..besides which, debating is too emotionally draining for me right now.

So there you go.

I suck at being healthy AND i suck at being Catholic.

(((hugs)))

p.s. still no contact with Blunderboy.

Posted in Faith Matters, Home & Family, In my World... | 9 Comments

Further Update

Many thanks to all who prayed and continue to do so, especially….

  1. Cathy
    Sep 10, 2010 @ 01:43:40

    Will continue to pray!!! May God bless you all!!!!

    Reply

  2. Valerie
    Sep 10, 2010 @ 03:59:52

    Thank you so much for the update. I will definitely continue to keep on praying for your family, Deb!

    Reply

  3. Matheus
    Sep 10, 2010 @ 11:37:07

    Will remember him and your family on my Rosary later today.

    Reply

  4. Aphra
    Sep 11, 2010 @ 01:33:42

    I have been praying and will continue to do so. Thank you for the update. Hugs.

    Reply

  5. Adrienne
    Sep 11, 2010 @ 07:26:14

    DEb – sending many prayers and will offer my Sat. vigil Mass for his recovery and for your entire family…

    Reply

  6. Barb Szyszkiewicz, sfo
    Sep 11, 2010 @ 22:42:32

    More prayers for your dad–and all of you, including his doctors and other caregivers, that they will be guided in giving him the best treatment and bringing him back to good health.

    him back to good health.Reply

    Lesley
    Sep 11, 2010 @ 23:29:45 [Edit]

    Deb

    Only just seen this, I am so sorry, Prayers going up for your Dad now and I will offer my Mass for him tomorrow.

    Lesley


    Here’s the update:

    It has been discovered that in fact Dad has many blood clots in his lungs.

    The specialist says some are old and some are new. It is clear to all that things could have been so very much different had these not been identified. The specialist believes that the blood clots would have started to build in Dad’s lungs as far back as the beginning of the year. He certainly hasn’t ‘been right’ since then, so it seems to make sense.

    Dad is on oxygen 24 hours a day but he is looking reasonably well and still has his jokey moments. We can’t wait to get him home but the oxygen needs to be sorted for him before that can happen, and his bloods need to be consistantly stable, but Dad is hoping to come out as early as the beginning of next week or mid week. He will remain on the oxygen for a long time, but if the blood clots go, most importantly, those which deter the flow of oxygen throughout his heart and lungs, then Dad hopes to one day not even have to use the oxygen. But we have to keep telling him not to get ahead of himself. We all need to take this one day at a time and deal with things as they develop 🙂

    Dad will need monitering and will have a lot of treatment and care from hospital/health workers, once he is home. He has already met some of the people who will be visiting him regularly to do various things for him like take his blood frequently, analyse his oxygen levels etc. Dad is going to be one pampered dude!

    Once again, many thanks for your continued concern, prayers and well wishes. God love you, i know i do.

    Posted in Home & Family, Uncategorized | 12 Comments

    Gratitude and an update…

    Many thanks to all of you who commented on the last post and those who prayed/are praying but didn’t leave a comment to let me know. Special thanks to….

    1. John
      Sep 08, 2010 @ 12:54:43

      Your Dad and all of you will be remembered in prayer.

      Reply

    2. Cathy
      Sep 08, 2010 @ 12:58:50

      You and your family especially your dad will be in my prayers!!!

      Reply

    3. Valerie
      Sep 08, 2010 @ 13:08:40

      It sounds like he has good medical care – so he is in good hands with them and in God’s hands during all of this. May God bring all of you comfort, strength, and peace during this! I’ll keep you in my prayers!

      Reply

    4. Barbara
      Sep 08, 2010 @ 13:09:10

      Prayers coming your way. Hugs.

      Reply

    5. Dainty Salmo Cordero
      Sep 08, 2010 @ 14:58:32

      Dear friend,
      I’ll keep on praying for your Dad.May the healing grace and loving touch of our Divine Healer be upon him and have a speedy recovery very soon.Be at peace.Jesus really care for your Dad,just trust God and everything will be back to normal.To the greater glory of God.Amen!

      In Jesus,
      Dainty

      Reply

    6. Pablo H.
      Sep 08, 2010 @ 15:21:44

      Hail Marys for your daddy.

      Reply

    7. Mary Lou
      Sep 08, 2010 @ 15:27:52

      I continue to hold your dear dad in my prayers as well as you and your family. Stay strong, Debbie, this is when they really need you by their sides.

      Reply

    8. Owen
      Sep 08, 2010 @ 17:18:31

      prayers ascending

      Reply

    9. KC
      Sep 08, 2010 @ 17:45:00

      Praying for your dad, and for the rest of the family as well. May God be with you!

      Reply

    10. Carol@simple_catholic
      Sep 08, 2010 @ 18:51:18

      Prayers going up for your dad (and for your whole family).

      Reply

    11. Mimi
      Sep 08, 2010 @ 20:01:15

      Lord have Mercy, my dear friend. Be assured of my prayers for Peter and for you and your family. Huge hugs

      Reply

    12. Suzanne
      Sep 09, 2010 @ 10:51:11

      Up early in the US on the 9th of Sept. and praying for your Dad and all of you.
      Gracious Lord, we know that You will be with them in their needs. Amen

      Reply

    13. Esther
      Sep 09, 2010 @ 19:29:25

      Deb, I am praying right now!

      Reply

    14. mum6kids
      Sep 09, 2010 @ 20:31:05

      Praying here Deb.

      Reply

    15. Barb Szyszkiewicz, sfo
      Sep 09, 2010 @ 21:04:49

      Praying!

    Here’s the update for tonight. We got to the hospital this evening to find that Dad had had a great deal more tests, one of which revealed something rather significant. The proffesor who is looking after Dad’s case had explained yedterday that it may be that Dad had had a couple of heart attacks and that may be the reason for the consistantly alarming ECG results and lack of oxygen in his body. However,  she did also tell Dad that she thought that also it could be that a blood clot was in his body somewhere.

    Well today Dad had a special type of scan that slices up (visually via computer!) his lungs and identifies anything untoward. What showed up was a blood clot in/on his lung and it is right next to his heart (valve, i think)  and obstructing the flow of oxygen through Dad’s heart. This has been quite a shock, but now the problem is known, work has begun (non invasive at this time) to do all that is possible to prevent the blood clot doing its worst.  I beg your continued prayers, well wishes and positive thoughts for Dad.

    Mum is a regular reader of my blog and many of your blogs too and she read the comments on yesterdays post and was really touched that so many lovely people from all around the world, who we may never meet, actually care about our little family and offers prayers for us and take the time to express their concern. God Bless you all, we love you and we appreciate you.

    I will continue to update as and when i can, at this point, with Dad’s lung problems deteriating and now with the blood clot blockage, it is going to take a considerable amount of time for Dad to be experiencing a better quality of life…but i have to say, that despite all my gripes with the NHS, they have cared for Dad exceptionally well up till now, and i pray they will long continue to do so. They are being very thorough.

    Dad will need moderate medium/long term care but we are just taking each day as it comes and thanking God for allowing things to unfold in such a way that the doctors have been able to identify what is wrong, before it was too late.

    Once again, many thanks to all,

    God Bless you!

    Posted in Home & Family, In my World..., Out of the Depths, Prayer Requests, Uncategorized | 7 Comments

    Urgent Prayer Request: My Dad

    Friends, of your charity please pray for my Dad, Peter, who was rushed by ambulance into hospital yesterday afternoon. At one point before the ambulance left there were 4 paramedics, a physiotherapist and another man crowded in the living room of my parents home (don’t know if the other man was a doctor as it all happened very fast).

    Dad has been on oxygen since the paramedics came, he has meds by nebuliser every 4 hours and is being pumped full of iv antibiotics, steroids and God knows what else. He’s endured a barage of tests, ECG’s, ex ray etc. He is being an absolute star, still managing to crack a joke here and there, but we are, understandably all concerned.

    We were up the hospital from before 4pm yesterday until midnight, and left him only when at almost midnight he was finally taken out of the high dependancy unit and transferred to a respiratory ward.

    Dad had only 40% of his lungs working at the best of times, before this, and he also has C.O.P.D. and plaque and other lung conditions besides. Me and Mum have been wanting to phone an ambulance at various points during the past couple of weeks because we knew Dad’s health was deteriating rapidly, but the cantankerous old bugger wouldn’t let us make the call….in the end, the physiotherapist who just happened (by God incidence) to drop in on Dad yesterday, took his oxygen measurement and called for an ambulance straight away. Will update more as and when. Many thanks in advance, for your most coveted prayers.

    Posted in Uncategorized | 17 Comments

    12 New Grow-Brag (& other) YouTube Vidz by Ukok

    Well i didn’t make these videos all at once, but i was rather lazy in not posting them as they were made, so that’s why i am posting all 12 vidz  in one go! Don’t forget that you can access all my YouTube vidz by visiting my YouTube Channel which is HERE!

    Grow – Brag Part 13 by Ukok

    Grow – Brag Part 14 by Ukok

    Grow – Brag Part 15 by Ukok

    Grow – Brag Part 16 by Ukok

    Grow – Brag Part 17 by Ukok

    Grow – Brag Part 18 by Ukok


    Dehydrating the Garden Harvest Part 1 by Ukok


    Dehydrating the Garden Harvest Part 2 by Ukok

    Rehydrating Dehydrated Vegetables by Ukok

    My Cute Snoozing Pooch by Ukok

    Patty Pan Squash Harvest by Ukok

    My Big & Beautiful Garden Bounty by Ukok




    Posted in Blogging & Internet, De-Growth, Dirt Girl, Frugality, Grow Your Own, Grow-Brag, Growing Stuff, Home & Family, In my World..., Inspiration, Simple Living, Ukok's Videos | 3 Comments

    The Good, The Bad and the Downright Ugly.

    The Good

    • Wondergirl got great A Level grades last week and now has a place at  The University of Birmingham, UK. For the foreseeable future she will commute. Bit stressy but we will see how it goes.
    • I have an upcoming appointment September 16th, with a Rheumatologist.
    • On days when health and weather permit  I have been enjoying the garden and making some preserves of the garden harvest. More videos have been made and I will post them this weekend, hopefully.

    The Bad

    • I’m suffering spiritually. I thought i was over this ‘spiritual depression’ but it just wants to wage war with me…and i ain’t anywhere close to ‘winning’.
    • Wonderboy doesn’t want any contact with us anymore. Haven’t seen him for 3 weeks. Last time I saw him I was 18 minutes late picking him up and he dropped that rather lovely bombshell. Nice eh?
    • Pain, depression, neuro type problems, breathing difficulties are making things difficult at the moment.
    • Darling Dad’s health is very poor. He has been very ill for the last 6-9 months or more and he is increasingly more so now. Please pray for him. The NHS are in the process of sorting out oxygen for him (to be installed at home) and a nebuliser etc, but as with everything  NHS, they are inordinately slow going and in the meantime Dad suffers, though never complains. Please pray for Mum too as she has her own health problems to contend with and is also Dad’s primary carer. I do what i can to help out but i wish i could do more, or that my folks would let me do more.
    • My concentration is very poor at the moment and I am exhausted much of the time. I try to do what I can, but often days, i don’t seem to do that much….then on better days i do too much and feel awful later on or during the days that follow. I feel inept. Ten years of declining health and still no firm diagnosis other than individual diagnoses ie: asthma, depression, myalgia etc. I suppose i want the rheumatologist to snap a diagnosis out of the air next month, but i am realistic enough to know that this may be yet another ‘dead end’.
    • It’s taken me 40 damn minutes of trying to log in to WordPress before i finally remembered my password.

    The Downright Ugly

    Posted in Blogging & Internet, In my World..., Just to say..., Prayer Requests | 12 Comments